Seeing Changes

Ok, I've lost count of the restart days, but we've been steadily increasing. Since we weren't seeing any negatives on the lower doses, I started increasing the dosage a bit faster, increasing 3 drops each day. We did 10 drops, 3x, yesterday. Today, after two doses of 11 drops, we started seeing some of that "weepy" behavior I've read about on AutismNCD. Since the second dose was later than usual, I'll drop down the dose to 5 tonight and then stick with 10, 3x/day, for at least a couple of days.

This weekend, we're visiting the grandparents. They haven't seen Demi for about 4 months and have noticed significant changes. Most noticeably, they've noticed increased interaction and communication - asking lots of questions, making connections and drawing conclusions from different facts, remembering certain things. Her speech is much clearer.

Gotta get back to family activities now.

Merry Christmas!

Up to 7/7/7

End of week two and we're up to 7/7/7 drops now, 21 in a day. I haven't seen any big changes yet, but no stimminess or hyperactivity either, quite a bit different from earlier this year. Perhaps she's less toxic now so she won't have as much of a reaction?

I'll continue pushing through the Christmas break. I'll be able to observe her even more closely. Over Christmas, our activities will be outside her norm since we'll be with grandparents, but she'll be home in her normal environment for 1.5 wks after that.

2nd Week (Day 9) of Restart

We're up to 5/5/5 and holding now. I'm not seeing excessive stimmy-ness or hyperactivity. I have noticed increased BM activity. I expect that to normalize soon; it's not causing a problem. She has had no accidents.

Yesterday, I went to her school for a small workshop and learned that the regular pre-K kids would be assessed before Christmas break on capital, lowercase, and letter sounds. Whichever letters/sounds weren't mastered, they'd get certain activities sent home to help. Last night, I asked Demi each letter sound, skipping around the alphabet. She knew all but 4 or 5. She knows all but maybe 2 capital letters and maybe 4-5 lowercase. That tells me she's right where the regular pre-K are. Yea for Demi! I was very pleasantly surprised. She seems to pick things up more quickly now. We'll see if that continues.

Day 5 of Restart

Dose: 5/4/4
Demi seems a bit more stimmy today, both verbal stims and general movement, not so much the hand waving that she ususally does.
She's still taking her fish oil, Juice Plus+ (adult dose), and Threelac (to guard against yeast).

For me, the headache has decreased (not that it was bad to begin with). It intensifies if I bend over. That, along with the pain over my molars, makes me think of sinuses. Could NCD be getting into that area? The pain in my upper jaw is mostly gone today.

Day 4 of Restart

Up to 4/4/4 today.
Demi's teacher reported that she seemed more distractable today, although she did well with tasks. She also reported additional stims.
At the dinner table tonight, she actually carried on a conversation with us about something that happened at school. Typically, she lapses into her own story dialogue without including us. Her eye contact was very good. Speech was mostly understandable (a relative term at best!).

Since her stims are not overwhelming, I'm going to continue increasing for now. Once up to 5/5/5, I might hold to allow her body to adjust.

As for me, I'm restarting, too. I've had the typical increase in BM's and increased urgency with urination. I've also had a mild headache which I'm sure is from not getting enough water. More muscle aches, although that could be due to workouts. I've also noticed a mild pain in my upper jaw, just over my molars. That started about the same time as the headaches.